Tomorrow morning is part 2 (of 2) of my diagnosis. I am 42 now. I am pretty sure myself that I am autistic, I have not found a better explanation for my life being the “shape” that it is.
I would be gutted if a professional decided that I do not belong here though. Fingers crossed that I have guessed right, and that the doc see me as I am, not just my mask.
Edit: just to follow up on this. I have just been diagnosed with Autism. I am extremely relieved. He was very casual about it, and very supportive. We also talked a lot about PDA, he said that describes a lot of my work and life challenges. I’m seeing him again in about 10 days where hopefully he can give me a bit of advice about what to do with this info. Thanks to all of you that commented.
If you’re right, you’ve identified something that explains part of what makes you who you are. If you’re not, at least you’ll have some extra information and the pros can point you toward other possibilities worth investigating. Easy for me to say not to worry about it from this side of the keyboard but in my opinion, there aren’t many bad outcomes here. You’ll probably come away with a better idea of what’s going on and, if this is your goal, treatment options.
People can make mistakes and misinterpret things too (even if they have fancy diplomas and letters after their names). Not suggesting going doctor-shopping for the answer you expect but there’s nothing wrong with getting another opinion.
You are absolutely right. Whatever the outcome, I will have learned something. Probably about me, or possibly about the doc. I can always go for a second opinion if needed. I hope it is not necessary, because I don’t have the energy frankly! Thank you though. I am hopeful I am right, it would explain a great deal of things. We’ll see what happens.
I would be gutted if a professional decided that I do not belong here though
If you feel like you belong, you do.
Doctors aren’t perfect, they make mistakes. After all, every other doctor that you’ve seen in your 40 odd years didn’t recognise your autism either, so while having an official diagnosis is great and validating, don’t be discouraged or feel dejected if one more doctor gets it wrong. I believe we know ourselves best, and if you feel like autism explains all of your struggles (I know it did mine when I had my lightbulb moment in my 30’s), then I’d go with that over what a doctor, however specialised has to say (I’ve seen neurodevelopmental specialists who sincerely thought adults can’t be autistic, and didn’t know about masking and other coping mechanisms we use to survive, so seriously, you can take their “expertise” with a grain of salt).
Good luck either way.
Thanks. Autism is the best fit I can find to date. I have not seen any doctor for approx. ten years. Last time I went to a doctor it was a psychiatrist that gave me an ADHD diagnosis, but I am not great at following up on things.
It was suggested to me a few years since then, also a few years ago (by a layperson) that I should look into Autism. I dismissed it at the time, because all I knew about autism was what I had found out through mass media which is nothing like what you find out through people’s experiences, or books etc.
Long story short, the more I look into it the more it feels like the correct fit. But the more it feels like the correct fit, the more weight the expert opinion seems to have. And, an answer of “get out of here you lazy git” would be a bit crushing at this point, precisely because the symptoms seem to fit and explain my life so well.
I take what you are saying though about expert opinions sometimes being less than infallible.
I am going to the appointment tomorrow though, no matter what. Will report back!
Thanks again.
There is a lot of cross-over between the two. AuDHD.
This is going to sound absolutely awful. Personal opinion, but I think ADHD feels like a great diagnosis to explain why you feel like you’ve spent a majority of your life “fucking up” as compared to others. Autism is a great diagnosis to explain why you have always been “weird” and “just can’t be normal.” As so much of life has taught us that if we can’t just fit the box expected of us (which differs via gender, race, and socioeconomic status) we’re broken individuals with little merit. I think a perfect example of this could even be seen in you having to be in your 40s before you actually might be able to setup some support systems for things you’ve needed your entire life.
Meh.
But also you know, nothing is perfect. Neurotypical people intrinsically find neurodivergent people off-putting in some manner (read a study on it a hundred years ago). This world is not setup for us in any way shape or form. Regardless of what your doctor tells you, you are already against the grain if you’re diagnosed ADHD. If you want to challenge the diagnosis, there’s always more money you can throw at the situation. But seemingly, nothing will ever be handed to you regardless of the label. And it seems to be more of an internal wound-healing device than something the world as a whole gives a plop about =/!
Sorry this sounds so awful, I just have a chip on my shoulder because I always assumed getting diagnosed (which was also later in life for me) would make things so much better. But outside of internet spaces (and by this I mean spaces directly tied to being neurodivergent as a whole) it’s been a detriment to speak on. And I have just put it in my back-pocket. Outside of having some joy in seeing others who may be similar in media from time to time (I don’t really diagnose people in front of me because I am not an asshole). It seems something that should be celebrated as a joy of self, just ended up being another reason for people in everyday life to put a “broken” label on me and treat me differently than they would if I were of a certain way instead.
But that’s on me, that’s my bitter. So I suppose - don’t let me ruin your party. Make your own decisions and form your own opinions around the situation =)
And, an answer of “get out of here you lazy git” would be a bit crushing at this point, precisely because the symptoms seem to fit and explain my life so well.
Been there, done that, was, as you suspect, crushing. But I was early in my journey and knew I was both new to the world of autism, and struggled to advocate for myself, so I kept at it, because like you say - everything just clicked, the more I read from and interacted with autistic people, the more I felt like my real self, and it perfectly explained everything I was struggling with (and also run wild and underdiagnosed in my family), you just know. Eventually I got “recognised” by a therapist and a gp, rather than go on a waiting list again for another year or two or pay privately to try and be “diagnosed” by different specialist. I’ve never been questioned about it since.
I am going to the appointment tomorrow though, no matter what. Will report back!
This is the best thing to do of course, it may very well go completely smoothly and you’ll get the diagnosis and maybe even some support, but it’s always good to be prepared in case it doesn’t, and (easier said than done, for sure) try not to catastrophise.
Will definitely keep an eye out for an update!
Fingers crossed. I know from my own experience that it can make all the difference in the world to finally have a lot (!) of things explained. (Got my diagnosis at the age of 34, ten years ago.)
Thanks. In some ways, with or without the diagnosis, I already have a lot of things explained (and relatable stories, hints, tips, systems - whatever I can glean from other people’s experiences). I guess I would like a pro to agree, to reduce the imposter syndrome a bit. And help me feel like I am home, at last! 🤞
Omg you are so fucking brave, thank you so much for posting all of this and please now we have to find out what tomorrow brings! Lol either way you just, must be home because I’m literally crying as I finished reading this thread. I’m 41 years old and in the United States. Mind if I asked, like, which one of your health care people did you ask about this referral to, or is this something I can google, and like, what are the right words I guess? Mentioning this topic to friends and family has often been met with Adam kind of “I’m pretty sure we would have known by now Adam, if this were true.” And then casual mentions to my medical doctor or my social work helper person have both been a bit of “wow you know that is really not my field at all, I’m sorry”
Ok now I’m the bothersome intrusive reply, point is, your post rocks, and so do you. I am in Adam house full of people but this post made me ACTUALLY feel not completely alone.
I’m not an expert in this area at all, but i think that if you’ve done some research and think you are autistic, then you’re extremely likely to actually be autistic. If you check enough boxes on the list, then that’s pretty much it.
Thank you. This is my hope. I had previously decided (loosely) that I didn’t need a diagnosis, and that I would just muddle through. Can’t remember now exactly what triggered it, but a few weeks ago I decided this is worth pursuing. I have done a few questionnaires and it all points the same way. Soon, I can stop wondering!
It was definitely the case for me. I was looking up symptoms because I had a student that a other teacher said she thought might be autistic, so I wanted to see what the signs are. Reading through the list, I was like “Holy shit…it me!” My coworkers were floored that I didn’t know I was autistic because they had spotted it right away. I told my mom, and she said, “Yeah…you’re dad and I always thought you might be.”
So I got tested at age 46 and got the diagnosis. Easy peasy. I mean apart from having to wait a few years until the right combination of health insurance, mental state, covid safety, and diagnosticians came along so that I wouldn’t have to pay $1500 out of pocket.
Edit: just to follow up on this. I have just been diagnosed with Autism. I am extremely relieved.
Glad to hear. All the best!
he can give me a bit of advice about what to do with this info
Let me know if he tells you anything particularly useful… I’m self diagnosed and am older than you, so I can’t come up with any reason to get diagnosed.